Tuesday, December 16, 2014

The Aspie Quiz

I got to take the newest version of the Aspie test. It's a little different this time but I got almost the same results as I always get.

I've found this to be fascinating and informative and was startled to see I was more adept socially than I expected.

Your neurodiverse (Aspie) score: 168 of 200
Your neurotypical (non-autistic) score: 53 of 200
You are very likely neurodiverse (Aspie)

If you are interested in discovering your own results from this test here is the link: Aspie Quiz

Monday, December 1, 2014

On birthdays...

Tomorrow is my birthday and once again I am crawling away into hiding. I don't mind people knowing my birthday but when it comes to my actual birthday I want to just hide until it passes. All the attention and the congratulations is a huge challenge. I don't like surprises. Not at all. I wish I didn't have to deal with surprises. So, today I did what I usually do when I get like this. I take all hints of my birthday down. I remove it from facebook and other places it may be hiding. In 2 days I will put it back. I find this to be very odd behavior. I don't think other people do this. And just in case someone says otherwise, I really don't care how old I am. I actually like getting older. It means I've got more information than I had the previous year through experience alone not to mention through research. I can't wait to start getting grey hair. I don't have any yet and I'll be 37 tomorrow. My mom doesn't have any either and she's 63. To me, greying and white hair grants you a sort of air of wisdom. I would like that. I would like respect that goes with age. Now, why can't I let people know it's my birthday tomorrow?

Friday, October 31, 2014

At Home Sleep Study

I have sleep apnea. I snore. I hold my breath. I don't breathe well when I lay down. When I'm pregnant I have to sleep on an incline or I can't breathe enough to sleep. I groan in my sleep and make noise. I used to talk in my sleep. Now I just murmur. If I eat wheat, I get horribly congested and snor really loudly. Dairy is not helpful either. 

For years I've contemplated getting a sleep study done so I might get some relief. For years I've been pregnant or nursing. I figured it was impossible due to nursing or growing a baby. When would I find 8 hours of time to do a study? Finally I talked to an allergist and he ordered an at home sleep study. 

When the little kit came I was pretty excited. I figured I would put this little strap on, nose piece, and finger monitor, and get some sleep. Boy was I wrong. My sensory processing went into overload. 

Here is my list of problems with this test:

1. There is a light on the monitor. If it turns red you have to fix your finger monitor. The green light is horribly bright. Haven't they read about light changing your hormone levels making it harder for you to sleep?
2. The chest strap is designed for men. I am a woman of ample chest and I'm nursing to boot which makes my chest bigger. That strap traveled up and put a bit of a strangle hold on me. How do you sleep when you're being strangled?
3. The finger monitor would have been fine if I slept with my hands away from my face. However, I prefer to sleep on my hands using them to angle my head in a good angle for best breathing. All those cords kept tickling my face. 
4. The nose piece was the worst part. The little ends that go inside your nose have a little angled bend to them that you wear pointing down. This causes those little angled pieces to tickle the inside of your nose. It's like someone is puposely tickling you while you try to sleep. What little air was going in my nose was also being blocked by the device. 
5. I like to sleep half on my face or chest down with much of my face in the pillow. I prop everything in such a way that I breathe better, like using a breathe right strip. The nose piece made this maneuver impossible as my nose became tickled. 

All in all I lasted for two hours before ripping it off and sending it back. I went from sleepy to awake. I took benedryl, which always makes me groggy, to so absolutely awake it was painful. There is no way I could ever consider doing that test again. I don't know how I would make it without being sedated heavily. 

Monday, January 27, 2014

The Big Day

Today is the big day, my 3rd c-section. I can feel myself going on autopilot and blanking for short periods of time. That part of me that is overwhelmed by the noise, hustle and bustle, hospital, people, etc. is gaining it's quiet space. Rather than focus on the chaos around me I fall into absorbtion of what I should be doing (holding still) and looking for patterns to focus on (the dots on the ceiling, the pattern of the blue paper sheet before me, the weave of the cloth at my fingertips). I wish I could focus more on what is happening around me but it is too much. I just want it to be over so I can move on to the next part of living. 

Thursday, January 23, 2014

Training Social Behavior

In talking to my mother today, who is also on the spectrum, I described to her my way of socializing my two boys. We had recently had a visit from my cousin who brought her little girl, also 3, but who was so terrified of people she had temper tantrums if her mother was out of sight. It was a reaction so foreign to me as I have never seen a child act so wild and lost. My boys are very friendly and will often approach complete strangers and ask to be picked up. I have no idea how my cousin is raising her child but from the reports by family members it is a common behavior for the little girl regardless of the situation. 

Being on the spectrum with NT children makes me concerned that I won't adequately socialize my children. Add that I plan to homeschool, I know that it will be all on me to socialize them with no external help from teachers, counselors, or yard duties. I am very challenged with socializing with people. Thankfully, I was in the military and they have very strict etiquette in how you interact with others. They run you through scenario after scenario to make sure you don't embarrass yourself or them with your actions. I've been trying to use some of the same techniques with my boys in an effort for them to appear socialized (fake it til you make it, right?).

I don't know if what I'm doing is any different than what my cousin is doing but I feel it's important to at least document what is currently working for my boys. 

My boys have very little interaction with other children their age, mostly because I'm concerned with hitting and biting and other agressive behaviors. Once they are more under verbal control than physical control, that will probably change. The only time my kids are around other people are at the store, church, holidays, and birthday parties. Once a week I take my boys to my parent's house and so they get that interaction as well. It doesn't seem like much or even enough. Yet, those two boys are not shy and will talk to nearly everyone. 

When I go to the store, especially Walmart where they have the greeters, I tell my boys to say hello and/or wave to the greeter right before we come into view. They sometimes act shy and won't do it but at least one child of mine will do as I ask. When we are leaving, I tell them to say good bye and I hear good bye to every checker all the way out the door, by my boys. 

Sometimes I think others are embarrassed by such behavior and will shush their children in order to not draw attention, but I think it is more appropriate my children interact with people. When else will they learn a skill like making eye contact on purpose and speak kindly to those they do not know? I have a friend who is 6'5" and will refuse to shop where people purposely engage him. He constantly slumps his shoulders to appear smaller. I find this behavior extreemly odd for a man as big as he is, and he is a 2nd degree black belt instructor. The slouching makes him look even bigger and taller. I don't want my boys to be so intimidated by social interaction. I want it to be second nature to them. 

When I know we are having a family event we will be going to, about a week before we go I start running through the names of everyone we will see. My boys have 8, 1st cousins on my husband's side and 4, 1st cousins on my side. The oldest of all the cousins on my husband's side just turned five years old and the oldest on my side will turn 14 this year. It's quite a spectrum of ages, more very little children than anything. This is wonderful for my boys as they have lots of kds their age to play with at family events. I also run through all of the aunt and uncle names. I feel that this gives my boys handles for each person they can hold onto. I even do this for when I take my boys to visit my parents. 

There are other little things but mostly it is verbal run throughs of what we should be doing. Practice, practice, practice. Eventually we will make it. 

Friday, January 3, 2014

On Rejecting Parental Authority

A discussion with a like minded friend uncovered a prejudice I have. I don't know if I was quite so aware of it but I can look back and see it effecting the relationships I have formed. 

Growing up I rejected the societal notion of rejecting parental advice. It seemed so silly to ignore good, well intended advice for the ability to carve my own path without help. Especially when there was logical reasoning behind the advice. The rule follower in me clung to this advice like it was a lifesaver in the middle of a vast ocean. I had zero desire to reject my parent's advice. They got me miles farther ahead of my peers who I didn't really want to associate with anyways. I had cars, a home, a good job, stability, friends, and fun. All thanks to following parental advice. I took very seriously the biblical command, "Honor thy father and thy mother" and did my best to show gratitude. It did not chafe me to do so. 

The discussion I had with my friend was on an acquaintance we both had. Neither of us really bonded with her as we had with each other. After talking for a bit I realized what was missing was a common bond of not rebelling from parental authority. This aquaintance talked with pride about how rebellious she had been and still is. She spoke of putting herself in such risky and dangerous situations that it was most uncomfortable to listen to her stories. She was a deeply religious person and shared her faith readily but she lacked something I still cannot pinpoint. In a way, I was irritated with her lack of strength to reject what society tells kids is normal. To me, she was a weak willed person for casting off good advice meant only to help her that came from a trusted source. A deeper friendship seems so impossible when she pushes me back with her prideful talks of something I could never relate to. 

This realization colors my world. It's going to take time to process it but it will be interesting to see where this perspective takes me.